HOW WE HELP
NET Cancer is the FASTEST growing class of CANCER worldwide
HELP US HELP OTHERSNEUROENDOCRINE TUMOURS (NETs) OVERVIEW
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Neuroendocrine tumours (NETs) are abnormal growth of cells (neoplasms) that arise from cells of the diffuse neuroendocrine system.
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NETs are considered complex tumours because both tumor growth and hormonal function must be addressed.
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NETs are most common in the lung or gastrointestinal system, but they can also originate in other parts of the body such as the thyroid, thymus, pancreas, adrenals, paraganglia, ovaries and testes.
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NETs are classified as functional (produce hormones that cause symptoms), or non-functional (may or may not produce hormones and do not cause hormonal symptoms).
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The cause of NETs is currently unknown.
CNETS NEWS
Temozolomide Access in Ontario
CNETS is pleased to share the news that the oral chemotherapy drug, temozolomide, often used in combination with capecitabine, known as the CAPTEM regimen, is now more accessible to Ontario-based neuroendocrine tumour (NET) patients. [...]
Lutathera Funded in Saskatchewan
As of June 1, 2021, Lutathera is now available in Saskatchewan. The reimbursement criteria is for patients with unresectable, well-differentiated midgut* neuroendocrine tumors (NET) in patients who have experienced radiographic disease progression during somatostatin [...]
COVID-19 VACCINE & NEUROENDOCRINE CANCER PATIENTS
Disclaimer: CNETS is a patient organization, and we are unable to provide medical advice. Any information or guidance contained herein should not replace personalized medical advice. Our objective is to provide you with general [...]
LUTATHERA Funded In British Columbia
CNETS is happy to announce that BC Cancer will now reimburse LUTATHERA for the approved indication. The BC Cancer Benefit Drug List, Published March 2021, Tumour Site: Gastrointestinal Peptide Receptor Radionuclide Therapy (PRRT) using [...]
INSPIRATIONAL NET CANCER PATIENT STORY
INSPIRATIONAL NEUROENDOCRINE CANCER PATIENT STORY Long-time CNETS fundraisers Bryde Fresque and Natalie Mezey, share a message of hope! As outlined in this Ottawa Hospital Foundation report, Bryde Fresque was diagnosed with a rare [...]
ESMO Guidelines: Lung & Thymic Carcinoids
Lung and thymic carcinoids: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up Published January 19, 2021 Highlights This updated ESMO Clinical Practice Guideline provides key recommendations on the [...]
CNETS PRIORITIES
SUPPORT
- In-person peer-led support groups meetings
- Dedicated patient email and phone support
- Online private support groups for patients & caregivers
EDUCATION
- Patient and caregiver education sessions across Canada
- Robust online patient educational resources
- Printed educational resources including the NET Reference Guide
- Annual NET Medical and Scientific Meeting
AWARENESS
- Raise awareness of NET cancer to the general public & the medical community
- Participate in World NET Cancer Day Activities
