Despite vast improvements in diagnostic techniques, neuroendocrine tumours remain one of the most elusive cancers to diagnose. The reasons are twofold: NETs are often slow-growing tumours and many of the symptoms associated with NETs are also typical for many hundreds of other diseases and conditions. Regardless, it’s worrisome, frustrating and unsettling to feel that you are the only person who is facing this uncertainty.

It is important to work proactively with your physician and other members of your healthcare team, diligently tracking your symptoms, undergoing tests and asking questions. Early, accurate diagnosis is the first step toward successful treatment and the best possible outcome.

There are many tests used to obtain a proper and complete neuroendocrine tumour diagnosis which include: blood, scans, scopes, urine and other tests.