We are excited to announce that the Carcinoid-Neuroendocrine Tumour Society of Canada (CNETS Canada) will be renamed and rebranded as the Canadian Neuroendocrine Tumour Society (CNETS).
We removed the word “Carcinoid” from our name and replaced it with “Canadian”. It’s a small change, but it means a lot! Today, there is a shift away from describing these tumours as “carcinoid”, meaning slow-growing and “cancer-like“, to the term neuroendocrine tumours (NETs). It is now recognized that “carcinoid” inadequately describes the characteristics of many NETs.
Our organization has been the only Canadian patient-driven organization for neuroendocrine cancer patients, their families and their support team since 2007. We believe that introducing “Canadian” in our name, will help us raise awareness of neuroendocrine tumours amongst the Canadian general public, the medical community and our funders.
Fortunately, the acronym remains the same, CNETS!
WHAT’s NOT CHANGING?
While our name is changing in order to create greater recognition and heightened awareness of neuroendocrine cancer in Canada, our five priorities remain the same, to provide support, education, awareness, research and advocacy for Canadian neuroendocrine cancer patients.
HOW WE HELP… OUR PRIORITIES
In-person peer-led support groups meetings
Dedicated patient email and phone support
Online private support groups for patients & caregivers
Patient and caregiver education sessions across Canada
Robust online patient educational resources
Printed educational resources including the NET Reference Guide
Annual NET Medical and Scientific Meeting
Raise awareness of NET cancer to the general public & the medical community
Participate in World NET Cancer Day Activities
Assist patients in advocating for access to treatments and diagnostics