CNETS NEWS
SHARED CARE PATIENT SURVEY
SHARED CARE PATIENT SURVEY CNETS wants to hear YOUR STORY to help make NET care better. You can share with us by completing the survey linked to this post. The information collected from this [...]
NET Biomarkers Guideline Published in JAMA Oncology
CNETS is thrilled to announce the publication of a biomarker guideline and patient supplements in JAMA Oncology. Citation: Loree JM, Chan D, Lim J, et al. Biomarkers to Inform Prognosis and Treatment for Unresectable or Metastatic [...]
Welireg (belzutifan): pCPA Negotiations
The pan-Canadian Pharmaceutical Alliance (pCPA) negotiation process for Welireg (belzutifan) concluded on 2024-08-30. Indication(s): Von Hippel-Lindau (VHL) disease in adult patients who require therapy for associated non-metastatic renal cell carcinoma (RCC), central nervous system (CNS) [...]
Expansion of public funding for Lutathera in Ontario to now include pNETs patients
Luththera: Funding update for radionuclide therapy for pancreatic neoroendocrine tumours (pNETs). Effective November 7, 2023, Ontario Health will fund the use of Lutathera to treat eligible pancreatic neuroendocrine tumour (pNETs) patients. This is in addition [...]
Update on Lutathera pCPA Negotiations for pNETs
One step closer to access to Lutathera for pNETs patients! The pan-Canadian Pharmaceutical Alliance (pCPA) negotiations with Advanced Accelerator Applications for Lutathera (lutetium 177 dotatate) in pNETs concluded on 2023-10-17. Negotiation Status: Concluded with [...]
Board Recruitment Announcement
Are you looking for a unique leadership opportunity? Have you been yearning to put your talent in strategic thinking, financial analysis, project management, communications or policy advocacy in the service of a great cause? Well, [...]
Somatuline Motorized Delivery Device – Press Release
Ipsen announces investment in new state-of-the-art electronic autoinjector for Somatuline® Autogel® / Somatuline® Depot (lanreotide) designed to improve patient experience. New electronic autoinjector is designed to improve patient experience for people living with gastroenteropancreatic neuroendocrine [...]
Caring Virtually: A Virtual Care Oncology Patient Study
I am writing to you as the co-Principal Investigator on CaringVirtually, a virtual care oncology patient study, requesting your support in sharing information about this study with your patient community and anyone else you [...]
CNETS Board Member Awareness
CNETS Board Member Awareness Patient Education and Fundraising A core function of CNETS is to offer the Canadian neuroendocrine cancer community useful, impactful and informative educational resources [...]